Some MS juice/smoothie/tonic/tea recipes for a couple of MSWORLD folks.
Bottom of the first scan contains the list of drinks. The rest of the scans are their corresponding recipes.
Click to maximize, then right-click to download. If you need a page re-scanned, or would like recipes for other illnesses – i’d be happy to do it.
I had a Q-EEG done Thursday, July 19th, at Cognitive Solutions Learning Center in Lincoln Park. I’ll talk about this more in the future after I get my test results back in a couple of weeks, but a Quantitative Electroencephalographic is basically a method for evaluating brain function based on your brain’s electrical activity. From what I understand, wave-forms of varying frequency, shape, location and amplitude are measured against what is considered “normal” and could possibly help pinpoint areas of weakness for use in targeted cognition therapy.
I’m not expecting any smoking guns or “A-Ha!!!” moments with regard to M.S. (after all, there was no “before” EEG taken, for comparison), but considering that a majority of my present and most debilitating symptoms are not physical, but cognitive; i’m curious as to what this could reveal.
I first read about EEGs in Facing the Cognitive Challenges of Multiple Sclerosis by Jeffrey Gingold; a book I recommend if you suffer from problems with cognition. But it was actually my personal trainer that introduced me to another client of his – a clinical psychologist – that happens to administer Q-EEGs and actually has a couple of other multiple sclerosis patients undergoing identical therapy. I’m not positive of what my therapy will entail, but i’m assuming that it will be similar to the therapy I received after being diagnosed with dyslexia as a child: cookies, Tang and completely demoralizing brain teasers.
More about my Cognition Issues:
From unusual at the start to just a downright fucking catastrphe in early 2012. They began to surface around early 2009 but were tremendously magnified after my Jun/2011 relapse. Before D/X, I naturally just blamed it on lack of sleep, exercise, stress, diet… the typical catalysts. After D/X, I’m stuck contemplating what exactly it is that I’m going to do with the rest of my life…
I easily survived an awful summer precursor after following & photographing the NATO protests in mostly 80+ degree heat for three straight days/nights and for about 20 miles total, according to my Garmin pedometer. But the true test was a sunny & sweaty 98-degree BBQ yesterday, where the only heat that troubled me was radiated from the overzealous carnivores; for bogarting the fire with my vegetable and fruit skewers. Hell with ’em. They knew they wanted one.
If yesterday’s atypical near-100 degree sunbath was an indication, then this summer is going to be a nightmare for anyone suffering from M.S. Though my symptoms seem to get more randy in high humidity (thankfully, it was pretty dry yesterday), I did notice some sensitivity to the sunlight reminiscent of the month or two following my last relapse. That’s nothing that a hat couldn’t handle and I’ll take it over the persistent nausea, exhaustion and vertigo I felt last summer, any day.
I lucked out and sprained (or possibly broke) something in my foot a couple weekends ago playing soccer, and missed out on the 5K I was supposed to run last Thursday. But considering how i’ve handled the heat of the past two weekends, i’m curious of how well I would have held up had I decided to run it (or even walk it). It was a hot 85-degree night and quite humid; last I recall.
I had to meet with my personal trainer that night and he agreed it was the right decision not to run it, even though I feel no pain right now unless my foot contorts in an odd manner. Apart from the M.S., he reminds me that I can’t ignore the fact that I’ve had three tibial fractures and now a foot injury within the past 10 months. Marcus had been going relatively easy on my lower body in the gym in light of my recent injury history and to injure/re-injure something would set me back even further, so I guess it was for the best.
I do want to start running and hiking again soon though. Getting antsy and impatient. My bone density tests came back fine a couple of months ago and I consume a lot of calcium in supplement form (to counteract the general lack of it in my diet), so I’m not sure why I keep fucking up my legs. The soccer incident was a freak accident with an inebriated fucktard, but the fractured tibias (and shin splints) were something new to me. Thinking about getting my gait tested.
Unless my boss, goes grinch, I’m heading out to Madison, Wis. to see Sleeping in the Aviary this Thursday night. Good band, good venue — excited as fuck. Nothing rids your memory of lingering verses and choruses from a mistake Gipsy Kings concert better than a good, loud, lo-fi, independent rock band.
This was by far the most informative break-down i’ve come across regarding vitamin-D and its relationship to Multiple Sclerosis (and other diseases). It’s a little on the long side, but explains the relationship in a concise and understandable manner. This is the kind of shit that makes me feel a little less doomed & hopeless.
I’m presently at about 2600IU Vitamin-D3 per day by supplementation alone, and I may have to triple that if streaking is still frowned upon.
3pm. My neuro called to tell me that he found no active or new lesions when comparing my MRIs against those taken in June of 2011. I know that this means little in the grand scheme of things but I’ve basically been holding my breath for 8 months. Hopefully this is the green light that I’ve been waiting for to get some semblance of normalcy back in my life. It’s a small win, but I’ll take it.
The MRIs are out of the way, but it’ll probably be a month before I can see my M.S. neuro again to get his analysis. Though, they did send me my brain and spine MRIs on DVD to torture me in the meantime. Awesome.
I snuck a peek tonight, despite promising myself that I wouldn’t. I take comfort in the fact that I don’t know anything about analyzing a brain or spine MRI because if I had to guess; there’s now a dead baby cheetah where my brain used to be… just above Sigourney Weaver’s hybrid Human/Xenomorph lovechild from the movie “Alien Resurrection”. They say it’s your Medula Oblongata, but you just cant believe everything that you hear. Especially if you’ve already named it Philippe:
This post might seem a little premature since I haven’t even yet described the diet & lifestyle changes I am making to battle the disease, but I am scheduled for my 2nd set of brain & spine MRIs (since diagnosis last June), on 03/10/2012; so I figured that now is as good a time as any to get this blog rolling with my first post. As for the rest of the site, please bear with me as I get everything organized.
Though I have largely been practicing the diet & lifestyle that will be the main focus of this blog for a good 4 months or so, I have to admit that I haven’t always been faithful to it and I’ve cheated more often than I am willing to admit. Shamefully, I started smoking again. Shamefully, I don’t exercise daily (though, this has a lot to do with recently fracturing both tibias after pushing myself a little too hard/fast). Shamefully, I haven’t been faithful to some of the many practices that my research, alt-medicine doctors/practioners, and family have taught me since my diagnosis.
With all of that being said, I’m officially marking 03/10/2012 “square one“; the first day… full-fledged. No more half-assing it.